Week 6

Supplements given: 1 tsp of California Olive Ranch Extra Virgin Olive Oil (First Cold Press) 1/8 tsp of Nordic Naturals Ultimate Omega Lemon Flavor and 1 tsp a day of NOW Foods Inulin Prebiotic

February 28, 2018 – Vincent has words!!!! Sure they’re the words he lost before starting the protocol but that’s ok with us. He is becoming more vocal and speaking with purpose. A couple of months ago he spoke BABA, BOBO, MAMA, MUM and the occasional DADA (stopped around October 2017) but only Mama and Mum was with purpose, directed towards me all the time. He woke up this morning saying BABA while pointing to his bottle. I cried full-blown tears! Could this be a just a one-time occurrence? I truly hope not.

March 1, 2018 – Thankfully the whining has officially come to an end since he hasn’t done it in the past few days. He is communicating beautifully. As soon as I walked through the door from work, he looked at me with perfect eye contact and said “Mum” and then lifted his arms for me to pick him up. I was floored. I’m loving this new side of Vincent and really feel like the light at the end of the tunnel is becoming brighter with every passing day.

March 2, 2018 – Vincent is starting to realize that his words mean something and get him exactly what he wants. I guess he was hungry and didn’t say anything to anyone or maybe everyone was wrapped up in their own world because this little boy did something he’s never done before. He went into the kitchen, opened the step stool, pushed it up against the cabinet and climbed up so he can reach his bottle. Once he got his bottle he walked over to the couch and laid down to drink it. Can someone say independent!?!?

March 3, 2018 – Vincent is becoming more exploratory with his foods. Today he ate 3 mini Oreos and loved it. He vocalized his wants regarding his bottle and bobo as well as when he wanted me. He is still receiving his supplements in one bottle in the morning and his bowel movements have been more frequent but I feel like that is normal since he is eating more.

Playground. Kids at the playground.

March 4, 2018 – Today was amazing! Vincent played all day with his cousins and loved every second of it. A couple of months ago he would’ve just played by himself but now he is in the middle of the chaos. He’s loving his trampoline, playing with all of his toys and running around with the kids. Who could ask for anything more. This little boy played from 9am to around 8pm with just a 90 minute nap around noon. No meltdowns or temper tantrums because of the noise either.

 

March 5, 2018 – Well someone was absolutely exhausted from all the fun he had yesterday. We dressed him and brought him downstairs but he gave us such a hard time to wake up. Eventually he woke up, had breakfast and went through all is sessions just fine. Mondays are always my longest work day so I was thrilled to see him still awake when I came home at 7:30pm. I love my quality time with him! Vincent was playing with his sister on the floor and got up to walk over to me. This sweet little boy probably sensed I needed a hug because he gave me the best hug ever and then removed his bobo to give me a kiss. Yes! the perfect ending to a long day.

March 6, 2018 – Vincent is doing amazing in his ABA sessions and truly loves sitting with his therapists to do his programs. Throughout the day we give him small programs to help reinforce what he did earlier in the day. “Wave bye-bye”, “Touch head”, ‘Blow kiss”… he can do them all but sometimes gets a little confused when he wants something we happen to be holding. He ends up doing everything all at once just to get the Apple iPad, cell phone or Samsung tablet. He had OT later in the afternoon making this one of his longer days but he got through it like a champ.

Summary: Vincent amazes me every day with his ability to problem solve and adapt to his surroundings. He will find a solution to whatever problem is in front of him as long as it serves his purpose of climbing and making a mess. Typical two year old behavior if you ask me. He has managed to spill countless drinks on purpose even if we tell him not to and then runs away laughing. I love that he understands but I’m so tired of picking up the garbage can a bunch of times or having to shampoo the living room rug twice in the same week. He is continuing to be vocal about his wants and needs. He even gets louder with his words if his needs are being ignored, like when he wants his bobo during a therapy session. We’re trying to ween him off the bobo so the therapist removes it during his lessons. He’s become more exploratory with Netflix and now has 3 new cartoons he absolutely loves, Thomas The Train, Spirit and Octonauts. 

Week 5

Supplements given: 1 tsp of California Olive Ranch Extra Virgin Olive Oil (First Cold Press) 1/8 tsp of Nordic Naturals Ultimate Omega Lemon Flavor and 1 tsp a day of NOW Foods Inulin Prebiotic

February 21, 2018 – Today I decided to increase his inulin and he tolerated it just fine. His bowel movements have been consistent but on the softer side after taking his supplements. I’m now putting all his supplements in one bottle for breakfast since we’re trying to limit his bottles and spoon feed him more now that he has shown enjoyment in eating by spoon. It’s still an ongoing challenge but he eventually shows genuine interest after a few minutes of pushing us away.

Children hands close-up

February 22, 2018 – Vincent is loving the one bottle a day instead of two bottles of supplements and it’s making my life easier too! He’s doing very well with his therapy sessions. Much more attentive to his programs even though the receptive id protocol upsets him. We’ve noticed he is eating so much more than usual and he has begun whimpering more when going about his daily activities. I spoke with my girlfriend about it and she mentioned her son is doing the same thing; both boys started the protocol around the same time.

February 23, 2018 – Vincent is truly so playful lately. He is interacting with everyone is the house and even looking to play with the dog.

February 24, 2018 – I woke up this morning to Vincent clapping! He had the biggest smile on his face… truly from ear to ear and CLAPPING!!!! I’m sure some people are reading this and thinking “He’s 2 yrs old, he should be clapping all the time”… But not this little boy! It took months of therapy to finally get him to understand that clapping is enjoyable so for him to wake up and lay in bed with a smile on his face while he’s clapping is truly music to my ears! Today was a great day all around.

February 25, 2018 – Ahhh Sunday Funday with the family is always the best! It’s a day that we can dedicate to the kids and not focus on schedules and structure. We can literally let the kids dictate how the day plays out and that’s OK! Our kids need the chance to explore and express themselves since that’s not always possible with our busy schedules revolving around work, school and therapy sessions. Vincent played so nicely with his sister. This is one gain that I see improve a little more with each passing day. I’m even thinking about involving him in a few group activities with other children.

February 26, 2018 – I’ve noticed giving him his supplements in the first bottle of the day has made a world of difference with him. He actually finishes every last drop on the first try. Vincent has been more attentive to his therapy sessions and showing more interest in his surroundings. He’s even more vocal! I contribute this to the increase in his inulin dosage.

February 27, 2018 – We had shrimp and spaghetti in olive oil with garlic. I always try to give him a taste of what we’re having for dinner since eating is an ongoing issue for him. He loved it! The more flavor, the better! I would say today was a great day since we have another dish under his belt. It’s truly the little things that mean the most during his journey.

Summary: I’ve increased his inulin from 1/2 tsp a day to a full tsp a day and have seen great improvement in him. We’ve seen many gains with Vincent since starting the protocol but the most gains were seen once I upped his inulin dosage. He is becoming more interactive with each passing day, playing appropriately with his toys and his sister. He wants to be out and about and playing with other children which is outside of his comfort zone. 

Week 4

Supplements given: 1 tsp of California Olive Ranch Extra Virgin Olive Oil (First Cold Press) 1/8 tsp of Nordic Naturals Ultimate Omega Lemon Flavor and 1/4 tsp twice a day of NOW Foods Inulin Prebiotic

February 14, 2018 – Today was Valentine’s Day and Ash Wednesday so we had seafood for dinner. Vincent tried a crabcake for the first time and absolutely loved it! He couldn’t get enough of it. I’m counting this as a “gain” because he is such a picky eater and has recently been more accepting to trying new things. He drank his supplements with no issues, even though it took him a few tries to finish the bottle with fish oil in it. Baby food helps mask the taste of the lemon but not fully.

February 15, 2018 – Today was Grandpa’s birthday so we had St. Josephs for cake. Vincent enjoyed the cream but didn’t want too much of it. Today he was giving amazing eye-contact and played very nicely with his sister. He even played catch with the dog. Lately he is being more interactive with his surroundings. He has beenBlue Birthday Cake a little whiney and having a few temper tantrums, which I was told is apart of the process in the first month of the protocol.

February 16, 2018 – Our son is extremely playful lately. He always enjoyed playing with us and laughing but we’ve noticed he has been initiating more the past few days the play scenarios. It’s still taking him multiple tries to get the fish oil down. I feel terrible since he is obviously hungry but doesn’t like the taste. I’m hoping eventually he will learn to tolerate it more. He just ends up eating more later in the day. His bowel movements are soft and more frequent than before the protocol. I’ve also notice no matter how many times we clean him, the smell lingers so he gets multiple baths throughout the day.

February 17, 2018 – Today was great day! He is starting to be more vocal. He’s babbling again and gesturing more to express his wants. I pray his words come soon. I’m longing for the day when I hear him say “No”. It’s amazing how these small milestones sometimes get over looked but I’m making sure we celebrate everything! Lots of cheers and hoorays happening over here. Supplements intake was easier today, just two tries to get it down.

February 18, 2018 – Our niece and nephew came for a visit today and Vincent and his sister were loving every second of it. He played so nicely with them and seeks out their attention when they were involved in other activities. He even allowed us to spoon feed him his meals even though he really wanted to be running around. Sunday Funday was truly exactly that! Perfect!

February 19, 2018 – Our little sunshine woke up happy until he had to do his therapy. I feel so bad for his first therapist of the day because he truly is not a morning person. Thankfully Daddy was home with him and I happily was off to work. I need to teach everyone how to give him them so I don’t have to rush in the morning and check-in a bunch of times to see if he drank it all. He did great with his programs and is giving great eye contact with everyone. His speech therapist started the facial massage and using the vibrating toothbrush with the textured edge attachment. He loved the massage but not the vibration.

February 20, 2018 – I had the pleasure of sitting with his speech therapist today to learn how to do the massage on his face and use the vibrating toothbrush with the textured attachment. This is to help him with his low-tone which causes him to drool a lot. He loves to be pampered so any hands on attention, he’s all for. Supplements are now being put into one bottle, first one of the day and thankfully he is so hungry that he drinks the entire bottle with no hesitation. Bowel movements are still frequent but no diarrhea, so I’m not complaining.

Summary: I’m going to increased his inulin from 1/2 tsp a day to a full tsp a day since I’ve read many blogs and articles about increasing the inulin to maximize the awakening stage.  We’ve seen many gains with Vincent since starting the protocol but not much with his talking, which is one of my greatest concerns with him. I can tell he is frustrated at times when he is trying to communicate with us but obviously cannot. I don’t want to teach him sign language just yet since I feel this will only prolong his words from coming out. Vincent found a new cartoon on Netflix that he absolutely adores… Thomas The Train! He laughs so much that he eventually goes into a silent laughter until he catches his breath. It’s truly one of the best moments this week.

Week 3

Supplements given: 1 tsp of California Olive Ranch Extra Virgin Olive Oil (First Cold Press) 1/8 tsp of Nordic Naturals Ultimate Omega Lemon Flavor and 1/4 tsp twice a day of NOW Foods Inulin Prebiotic

February 7, 2018 – Today I introduced the Inulin into his morning bottle with the olive oil since it’s a formula bottle and gave him the fish oil in his nighttime bottle with baby food. He accepted it since it didn’t change the taste. Vincent is improving with his spoon-feeding and getting more curious about other food items. He has gone back to mouthing a lot but that has to do with him not having his OT on a regular basis but we finally found a new OT so I’m hoping to see the mouthing of object to stop or at least slow down. He is giving unbelievable eye contact. I swear it’s like he sees into my soul with his intense looks at me and when he smile… OMG!!! my heart literally skips a beat! Today was a good day. Still sick but like I said before, it takes him a while to improve. He’s on his 3rd day of medication so he will be on the mend in no time.Portrait of a two years old child sitting at the table

February 8, 2018 – Gave him the supplements in the same way as the day before. No issues. He is doing well with his ABA therapists, loves playing with his blocks and is even clapping up a storm every chance he gets. He recently learned how to do this and now thinks it’s the next best thing to cuddles with his mama. He claps after he’s done eating and even wakes up clapping. It’s the little things that count the most and we sometimes overlook. Even though this journey is difficult for him and us, it’s also extremely rewarding to watch him gain a new skill. He stopped throwing his bottle! Instead he now walks it over to us to let us know he is finished with it. Just in time for the new couch to arrive. Mama thanks you my little prince! I spoke with his speech therapist about working with him more on his sounds and possible oral prompting. I love that we’re on the same page with his treatment.

February 9, 2018 – It’s like I have a new baby! He is more aware of his surroundings, and of us. I took him on a playdate and he actually went out of his way to play with the other kids. This a first!!!!! He usually plays with us or his sister, but for him to play with other children, is huge! Hence all the exclamation points. I want to express my excitement because I can’t hold it in. He’s 25 months today! Our little boy is growing up and making gains every day. I just can’t wait to hear his true voice. Supplements were accepted just fine today. No issues with bowel movements.

February 10, 2018 – Today we decided to take the kids to Toys”R”Us to walk around and play with the toys. We were hoping something would catch Vincent’s eye as he explored the store. He loved the open space and ran up and down all the aisles playing with every toy that piqued his interest. You’re probably thinking this is the behavior of a typical 2 year old and you’re right! But, 6 months ago, heck 3 months ago we were unable to take him to the store, have him hold our hand to walk or even listen to us when we called his name. Truly this gain comes from his amazing ABA Therapist from Thursdays Child. These ladies have made great progress with Vincent in the past 6 months. Sure he still has a long road ahead of him but every step forward is one step closer to him being his true self. Today’s supplements were given in two bottles, breakfast and nap-time. He accepted all the supplements with no issues and bowel movements have been softer than usual but thankfully not diarrhea. He extremely playful with the dog and looks to play with his new Thomas The Train that he picked out today from Toys”R”Us.

February 11, 2018 – Today I will give him the inulin twice a day in his bottle and hoped it wouldn’t affect his bowel movements too much. All day he had regular bowel movements which I contribute to the amount of the olive oil given. I know inulin can sometimes cause constipation but thankfully its smooth sailing over here! He accepted all his supplements today with minimal issues and even fed himself pieces of a muffin. It’s all about the baby steps so I will take an gains as a positive sign. Today was a lazy rainy Sunday so lots of cuddling and Disney channel today.

February 12, 2018 – Ahhh Mondays! So hectic to get back into the week after a relaxing weekend, but the cycle begins again. He is truly a team player even though we have to wake him up for his first session. I’m off to work and the Hubby is home with him so I gave him his morning supplements with the breakfast bottle and before he went to bed I gave him the fish oil with the second dose of inulin. It takes him about 3 tries to get the bottle down since the lemon taste is so strong. We then continued on with our nightly ritual of his bath, playing, snuggles and tickles. He loves to play with his sister and has improved with waiting his turn.

February 13, 2018 – Today was a good day even though he is still under the weather. We limited his milk bottles to one a day to help with the mucus, runny nose and coughing. He ate baby food throughout the rest of the day. He is still accepting the supplements but does give us a hard time with the fish oil at night if the bottle isn’t warm. Our son is extremely picky, if you haven’t noticed already. He’s laughing more and expressing more of his wants with physical prompting.

Summary: This week was a lot of trial and error with getting the supplements down. He ultimately accepts them but it might take a few tries. His feeding has been moving in the right direction but still going very slowly. It all depends on his mood. He ultimately enjoys his food but still tries to control his intake of it. We love that he doesn’t throw his bottle anymore when finished with it. He actually holds it up and says sounds to get our attention or walks it over to us. He has become more exploratory when using the iPad, especially with Netflix.