Week 4

Supplements given: 1 tsp of California Olive Ranch Extra Virgin Olive Oil (First Cold Press) 1/8 tsp of Nordic Naturals Ultimate Omega Lemon Flavor and 1/4 tsp twice a day of NOW Foods Inulin Prebiotic

February 14, 2018 – Today was Valentine’s Day and Ash Wednesday so we had seafood for dinner. Vincent tried a crabcake for the first time and absolutely loved it! He couldn’t get enough of it. I’m counting this as a “gain” because he is such a picky eater and has recently been more accepting to trying new things. He drank his supplements with no issues, even though it took him a few tries to finish the bottle with fish oil in it. Baby food helps mask the taste of the lemon but not fully.

February 15, 2018 – Today was Grandpa’s birthday so we had St. Josephs for cake. Vincent enjoyed the cream but didn’t want too much of it. Today he was giving amazing eye-contact and played very nicely with his sister. He even played catch with the dog. Lately he is being more interactive with his surroundings. He has beenBlue Birthday Cake a little whiney and having a few temper tantrums, which I was told is apart of the process in the first month of the protocol.

February 16, 2018 – Our son is extremely playful lately. He always enjoyed playing with us and laughing but we’ve noticed he has been initiating more the past few days the play scenarios. It’s still taking him multiple tries to get the fish oil down. I feel terrible since he is obviously hungry but doesn’t like the taste. I’m hoping eventually he will learn to tolerate it more. He just ends up eating more later in the day. His bowel movements are soft and more frequent than before the protocol. I’ve also notice no matter how many times we clean him, the smell lingers so he gets multiple baths throughout the day.

February 17, 2018 – Today was great day! He is starting to be more vocal. He’s babbling again and gesturing more to express his wants. I pray his words come soon. I’m longing for the day when I hear him say “No”. It’s amazing how these small milestones sometimes get over looked but I’m making sure we celebrate everything! Lots of cheers and hoorays happening over here. Supplements intake was easier today, just two tries to get it down.

February 18, 2018 – Our niece and nephew came for a visit today and Vincent and his sister were loving every second of it. He played so nicely with them and seeks out their attention when they were involved in other activities. He even allowed us to spoon feed him his meals even though he really wanted to be running around. Sunday Funday was truly exactly that! Perfect!

February 19, 2018 – Our little sunshine woke up happy until he had to do his therapy. I feel so bad for his first therapist of the day because he truly is not a morning person. Thankfully Daddy was home with him and I happily was off to work. I need to teach everyone how to give him them so I don’t have to rush in the morning and check-in a bunch of times to see if he drank it all. He did great with his programs and is giving great eye contact with everyone. His speech therapist started the facial massage and using the vibrating toothbrush with the textured edge attachment. He loved the massage but not the vibration.

February 20, 2018 – I had the pleasure of sitting with his speech therapist today to learn how to do the massage on his face and use the vibrating toothbrush with the textured attachment. This is to help him with his low-tone which causes him to drool a lot. He loves to be pampered so any hands on attention, he’s all for. Supplements are now being put into one bottle, first one of the day and thankfully he is so hungry that he drinks the entire bottle with no hesitation. Bowel movements are still frequent but no diarrhea, so I’m not complaining.

Summary: I’m going to increased his inulin from 1/2 tsp a day to a full tsp a day since I’ve read many blogs and articles about increasing the inulin to maximize the awakening stage.  We’ve seen many gains with Vincent since starting the protocol but not much with his talking, which is one of my greatest concerns with him. I can tell he is frustrated at times when he is trying to communicate with us but obviously cannot. I don’t want to teach him sign language just yet since I feel this will only prolong his words from coming out. Vincent found a new cartoon on Netflix that he absolutely adores… Thomas The Train! He laughs so much that he eventually goes into a silent laughter until he catches his breath. It’s truly one of the best moments this week.

Week 3

Supplements given: 1 tsp of California Olive Ranch Extra Virgin Olive Oil (First Cold Press) 1/8 tsp of Nordic Naturals Ultimate Omega Lemon Flavor and 1/4 tsp twice a day of NOW Foods Inulin Prebiotic

February 7, 2018 – Today I introduced the Inulin into his morning bottle with the olive oil since it’s a formula bottle and gave him the fish oil in his nighttime bottle with baby food. He accepted it since it didn’t change the taste. Vincent is improving with his spoon-feeding and getting more curious about other food items. He has gone back to mouthing a lot but that has to do with him not having his OT on a regular basis but we finally found a new OT so I’m hoping to see the mouthing of object to stop or at least slow down. He is giving unbelievable eye contact. I swear it’s like he sees into my soul with his intense looks at me and when he smile… OMG!!! my heart literally skips a beat! Today was a good day. Still sick but like I said before, it takes him a while to improve. He’s on his 3rd day of medication so he will be on the mend in no time.Portrait of a two years old child sitting at the table

February 8, 2018 – Gave him the supplements in the same way as the day before. No issues. He is doing well with his ABA therapists, loves playing with his blocks and is even clapping up a storm every chance he gets. He recently learned how to do this and now thinks it’s the next best thing to cuddles with his mama. He claps after he’s done eating and even wakes up clapping. It’s the little things that count the most and we sometimes overlook. Even though this journey is difficult for him and us, it’s also extremely rewarding to watch him gain a new skill. He stopped throwing his bottle! Instead he now walks it over to us to let us know he is finished with it. Just in time for the new couch to arrive. Mama thanks you my little prince! I spoke with his speech therapist about working with him more on his sounds and possible oral prompting. I love that we’re on the same page with his treatment.

February 9, 2018 – It’s like I have a new baby! He is more aware of his surroundings, and of us. I took him on a playdate and he actually went out of his way to play with the other kids. This a first!!!!! He usually plays with us or his sister, but for him to play with other children, is huge! Hence all the exclamation points. I want to express my excitement because I can’t hold it in. He’s 25 months today! Our little boy is growing up and making gains every day. I just can’t wait to hear his true voice. Supplements were accepted just fine today. No issues with bowel movements.

February 10, 2018 – Today we decided to take the kids to Toys”R”Us to walk around and play with the toys. We were hoping something would catch Vincent’s eye as he explored the store. He loved the open space and ran up and down all the aisles playing with every toy that piqued his interest. You’re probably thinking this is the behavior of a typical 2 year old and you’re right! But, 6 months ago, heck 3 months ago we were unable to take him to the store, have him hold our hand to walk or even listen to us when we called his name. Truly this gain comes from his amazing ABA Therapist from Thursdays Child. These ladies have made great progress with Vincent in the past 6 months. Sure he still has a long road ahead of him but every step forward is one step closer to him being his true self. Today’s supplements were given in two bottles, breakfast and nap-time. He accepted all the supplements with no issues and bowel movements have been softer than usual but thankfully not diarrhea. He extremely playful with the dog and looks to play with his new Thomas The Train that he picked out today from Toys”R”Us.

February 11, 2018 – Today I will give him the inulin twice a day in his bottle and hoped it wouldn’t affect his bowel movements too much. All day he had regular bowel movements which I contribute to the amount of the olive oil given. I know inulin can sometimes cause constipation but thankfully its smooth sailing over here! He accepted all his supplements today with minimal issues and even fed himself pieces of a muffin. It’s all about the baby steps so I will take an gains as a positive sign. Today was a lazy rainy Sunday so lots of cuddling and Disney channel today.

February 12, 2018 – Ahhh Mondays! So hectic to get back into the week after a relaxing weekend, but the cycle begins again. He is truly a team player even though we have to wake him up for his first session. I’m off to work and the Hubby is home with him so I gave him his morning supplements with the breakfast bottle and before he went to bed I gave him the fish oil with the second dose of inulin. It takes him about 3 tries to get the bottle down since the lemon taste is so strong. We then continued on with our nightly ritual of his bath, playing, snuggles and tickles. He loves to play with his sister and has improved with waiting his turn.

February 13, 2018 – Today was a good day even though he is still under the weather. We limited his milk bottles to one a day to help with the mucus, runny nose and coughing. He ate baby food throughout the rest of the day. He is still accepting the supplements but does give us a hard time with the fish oil at night if the bottle isn’t warm. Our son is extremely picky, if you haven’t noticed already. He’s laughing more and expressing more of his wants with physical prompting.

Summary: This week was a lot of trial and error with getting the supplements down. He ultimately accepts them but it might take a few tries. His feeding has been moving in the right direction but still going very slowly. It all depends on his mood. He ultimately enjoys his food but still tries to control his intake of it. We love that he doesn’t throw his bottle anymore when finished with it. He actually holds it up and says sounds to get our attention or walks it over to us. He has become more exploratory when using the iPad, especially with Netflix.